Autism Spectrum Disorder (ASD) affects millions of children worldwide, and India is no exception. According to a 2021 study published in the Indian Journal of Paediatrics, the estimated prevalence of autism in India is around 1 in 68 children.

Parenting a child with autism presents a unique set of challenges that can significantly impact families. These challenges vary depending on the severity of the autism, your child’s individual needs, and the resources available. Here are some common challenges faced by parents of children with autism:

• Communication difficulties and behavioural issues: Many children with autism struggle with communication, including verbal and nonverbal communication skills. They may also exhibit challenging behaviours such as aggression, self-injury, tantrums etc.
• Social Isolation: Families of children with autism may find it challenging to participate in social activities, attend gatherings, or maintain relationships with friends and family members who do not understand or accommodate the child's needs.
• Emotional Toll: Parenting a child with autism can take an emotional toll on parents. Feelings of stress, guilt, grief, and isolation are common.
• Uncertainty about the Future: There might be uncertainty and anxiety about the child's future, including their ability to live independently, pursue education or employment opportunities, and form meaningful relationships as they grow older.

Apart from these, there might also be the impact of financial strain, stress of balancing various daily responsibilities, navigating the education system to ensure proper support and accommodations at school etc.

What will help you and your family thrive?

Educate yourself and join support groups: Learning about autism spectrum disorder (ASD) can empower you with knowledge and understanding of your child's needs. Joining support groups or online communities for parents of children with autism can provide immense emotional support, practical advice, and a sense of belonging. Connecting with others who understand their experiences can be incredibly valuable for sharing stories, exchanging tips, and finding solidarity.

• Early Intervention Services: Accessing early intervention services is crucial for children with autism, as it can help improve outcomes and development.
• Structured routines: Establish structured routines at home helps your child feel more secure and thrive. Predictability lessens anxiety, reduces the fear of changes in the day or routine, and supports independence and communication.
• Avoid comparing: Your life might look very different to your friends’, but that doesn’t make it any less valuable or rewarding. Comparing your circumstances and experiences with those of other families can make it harder to appreciate the good times and achievements in your own family.
• Talk to your child about autism: Your child is likely to realise that they are different from their peers, and many children will be trying to make sense of why. Children might wrongly think that their difference is a character flaw or something “wrong” with them. At a suitable age, talk to your child and help them understand it.
• Take time for yourself: Taking breaks and practicing self-care is essential. It provides temporary relief, can help prevent burnout and promote overall well-being for the whole family.
• Counselling: Seeking counselling can help manage stress, anxiety, and other emotional challenges. It’s a safe space for you to process your feelings, develop coping strategies, and learn effective parenting techniques.

Supporting your other children:

Some children might not understand, and react badly to having a sibling with autism. What can you do to help?

• Set aside regular time which is just for them, and make sure the focus is completely on them at these times.
• Ask them to share their questions and worries about their sibling, and explain what is happening with their sibling.

Parenting an autistic child is a journey of continual learning. Just as you settle into a pattern, a new challenge will come up, and you will have to learn how to work with or around that challenge. Despite this, many parents of children with autism experience moments of joy, pride, and resilience as they witness their child's progress and celebrate their strengths and accomplishments.